Resources:

FREE NDIS Workshop (May 2025) -https://www.gobeyondtherapy.au/ndis-workshop-may-2025 

Online Conference (May 2025) - Empower and Thrive: New Approaches to Family Support- https://www.gobeyondtherapy.au/online-conference 

Reframing Autism -https://reframingautism.org.au 

Every Australian Counts -https://everyaustraliancounts.com.au

Where to find Go Beyond Therapy: 

Facebook - www.facebook.com/gobeyondtherapy

Instagram - www.instagram.com/go.beyond.therapy

For more episodes of the podcast visit - www.gobeyondtherapy.au/podcast

Episode Transcript

Hi, and welcome back to another episode. If your head is spinning with all the talk about the NDIS changes lately, you are definitely not alone. Whether you're a parent navigating the system for your child, or if you're someone working in the disability space supporting families, this episode is for you.

Because while we wait for more clarity, many of us are sitting in this [00:02:00] uncomfortable space between not sure what's coming, not sure how to plan, and this sense of worry, that's really hard to shake. Today I wanna hold space for that, not to fix it. But to acknowledge it and what it's like to live in the unknown and offer a few gentle, real world ways to take care of yourself in the middle of all this. Because if anything's for certain is that the NDIS changes are only just beginning.

Let's slow things down just for a minute and really sit with this anxiety and stress around change isn't just about what's new, it's about what might be lost. So for parents, that might sound like, what if my child loses the support that's finally been making a difference? What if we have to start from scratch again? I don't have the energy to fight the system anymore. For therapists, support workers and coordinators it might be like, how do I keep supporting families when I dunno what's coming? What if my role [00:03:00] changes or my capacity shrinks? How do I hold space for others when I'm feeling just as unsure?

These are real human fears, and when we sit in limbo, not knowing what to expect, but knowing things are changing, it can stir up a mix of dread, grief, and helplessness. This kind of uncertainty isn't just stressful, it's exhausting. Because even when the future's unclear, life keeps going, you are still packing lunch boxes, still showing up to appointments, still making sure the paperwork gets done, still chasing the next goal or calming the latest meltdown. And that creates what I call background anxiety. It hums in the background in the system even when things look calm on the surface. But when we don't name it, it starts to seep in, into our sleep, our patience, our hope. So let's name it here. This is a lot. You are not weak for feeling overwhelmed and you don't need to carry it alone.

I'm even going to borrow a couple of minutes of your time right [00:04:00] now. You're obviously found a little bit of time in all the craziness to listen to this podcast episode, so I'm gonna piggyback off it just for a minute and we're gonna take a moment together to pause.

So wherever you are right now, walking, driving, please be mindful if you are driving, folding laundry or just sitting with a cup of tea. See if you can bring your attention gently back to this moment. You don't need to close your eyes, and please don't if you're driving, you don't need to be still. Just be here with me.

Start by noticing your body. Feel your feet. Are they on the floor or your body supported by a chair? If it feels okay, take a slow, steady breath through your nose and a long, gentle breath through your mouth. Let your shoulders drop just a little. Let your jaw [00:05:00] soften.

Let your hands rest where they are and know you don't have to do anything right now. Just be. Notice your senses. Now bring your attention to what is around you through your senses. Can you name one thing you see? One thing you hear? Or one thing you feel. You don't have to go searching, just gently notice. That might be the sound of your child in the next room or the feel of your clothes against your skin in, or a bit of sunlight coming through the window. Let these things anchor you right here, right now.

Do you find you're holding tension [00:06:00] somewhere in your body? Is it in your shoulders? Is it in your back? Is it in your feet? Check in with your body. Start at the top. Feel the weight of your head. Are your eyelids heavy? Is your mouth dry? And slowly move further down towards your neck and your shoulders. Feel the weight of your arms. Feel your breath move in and out of your body. Is it fast paced? Is it slow and steady? Is it somewhere in between? Move towards your belly and your diaphragm? Are there butterflies? Is there nerves? Is there [00:07:00] stress? Move towards your legs now. Are they tired? Are they tired from walking around? Are they tired from holding you up? If so, rest, take this moment to check in with your body and notice how your body feels in this moment. Now let's take three breaths together. Inhale slowly and gently exhale again, in and out. And one more time slower if you can, in and [00:08:00] out. There's no right way to do this. The goal isn't calm or quiet, it's just being present with yourself for a moment.

And now just for a few seconds, place your hand on your chest or somewhere that feels comforting. And silently say to yourself, " I'm doing the best I can. It's okay to feel what I feel, and this moment will pass us". You can repeat those words or change them to something that fits where you are today. When you're ready, take one final breath. Let your eyes gently turn to what is in front of you. Let your mind come back to your day. Just be a little steadier.

Now, we are gonna continue with the podcast episode, but if you need to, feel free to pause the episode and just be in this moment. Take the time that you've put aside to listen. And just [00:09:00] be.

So how do we hold steady when everything around us feels unsteady? These ideas aren't to fix anything. They are just gentle nudges and reminders that you still have choices and you still deserve support. So number one. Let yourself pause. You don't have to be across every change, every rumor, every headline.

It's okay to step back for the day or for the week and just focus on your own wellbeing. Unplug when you need to. You're worth, as a parent or a professional, is not tied to how up to date you are. Number two, come back with what is solid, the relationship you've built with your child, the trust between you and your team. The progress, no matter how big or small, that's already been made, write it down if you need to. A little list of what is still true, what is still tangible, and what you can focus on will be fantastic to keeping you focused and grounded. Number [00:10:00] three is to connect with someone who understands. Whether it's a parent you've met through a group program, a trusted therapist, a coworker who gets it, connection is protective. Even a 10 minute chat where you don't have to explain everything can make a big difference. Chatting things through and getting them off your chest will really help in this situation.

Be kind to your nervous system. When we are bracing for impact, we often stay on alert without realizing it. We've got so much adrenaline pumping through our bodies that the moment we take a little moment to stop, we just fall in a heap that all this can then turn into burnout, fatigue, and even feeling numb, which doesn't help anyone try small grounding practices. So sit outside for five minutes and notice what you hear. Put your feet flat on the floor and take three slow, big, deep breaths. Choose one small thing you can finish today and then let that be enough. These aren't [00:11:00] self-care hacks. They're nervous system resets, and they really matter.

Focus on your sphere of influence. In times of uncertainty, focusing on what is in your control can help reduce helplessness. That might mean asking your therapist to explain what they know so far. Reaching out to advocacy groups like every Australian counts or reframing autism, speaking up at a planning meeting, or emailing your local MP. Or it might be something far simpler as saying no to a new commitment, leaving the laundry for the following day. Giving yourself permission to not have it all figured out. Action doesn't always look like advocacy. Sometimes it looks like rest.

You are not expected to have all the answers, none of us do right now. But you are allowed to protect your energy to care for your nervous system, and hold on to the heart of why you do what you do. Whether you are advocating for your child or working to support others. [00:12:00] At Go Beyond Therapy we're holding space for this too, for ourselves, for our team, and for our families. 

A good place to go from here is, we are running a NDIS webinar on the changes that we are noticing here at Go Beyond Therapy and within the NDIS space, both from a parent's perspective, but also from a clinician's perspective. That webinar is happening in May later this year.

If you're listening to this podcast episode post may, feel free to head to our website. The recording will be under our resources tab, feel free to sign up to the webinar from there and have a listen to the changes that we're experiencing in May. Now, please note that this is in May, things change very quickly in the NDIS space that there'll come a time where the webinar in May will no longer be applicable, so just be mindful of that as well.